Quote:
Originally Posted by RedPenguins
Natalie -
I remember having all of my nerves acting up because I had to wait soooo long for my first appointment. Waiting is always the worst!
Anyhow, the infusion was cake - no problems. I was actually shocked. I had no reactions and actually questioned if they just gave me a saline drip and no Ty. However, I was pretty weak and beat up for a few days after the Tysabri infusion. After that, it was okay.
As for infections and colds, I had no problems - and I work with children (often sniveling and snotty and booger-y ones). LOL. The only thing I noticed was that I had one pretty bad UTI and a more mild one - both bladder/kidney infections (so no burning or anything like that - mostly pain in my kidneys). And although I've never had UTIs as an adult, I can not say if it was the Ty or the MS that caused it.
Other than that, like I said, no problems. Even the feeling beat-up and weak and the UTIs still made Ty worth it to me. Some others have had bad reactions during the infusion or after - but just like with all the other meds - everyone reacts differently. I guess we all just hope that we will respond well to whatever med we choose to be on!
I wish you the best of luck - and hang in there - I know how anxious, nutty, angry, frustrated, annoyed, and SCARED I was while having to wait. But hopefully when the three weeks are up - the infusion will have happened and been a breeze!
~Keri
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Hi Keri,
Thanks so much for the kind encouraging words.
Sometimes I think sitting around waiting for doctor's appts., MRI's, or treatments to start may be even worse than actually going through it. I think I just thought that once I got approved I'd be in the infusion room in a couple of days. Guess it doesn't always work like that. If it is not one thing, it's another. A few weeks ago I was sitting around waiting for my first time visit with the big MS clinic in my city and it was driving me batty. Then I was worrying about an upcoming MRI in a new facility and what the results would be. Now it's the Ty infusion hanging over me. I'm trying to be calm and breathe. It makes it hard to concentrate on work and life. I'm still struggling with the whole "you've got MS thing" (I'm sure you are too). You must be feeling anxious waiting for the HiCy treatment.
Good luck with that.
Natalie
