Quote:
Originally Posted by GalenaFaolan
First of all, *Big Soft Gentle Hugs* for you!!! I know what long, drawn out flares feel like for sure! I just recently got calmed down from a 3 week long one. I've had rsd for 5 1/2 yrs now and I've never had one last that long before. I'm still quite exhausted!
WOW! You work that many hours?! Kudos to you for keeping on going the distance! :-D I haven't been able to work since the rsd started and know that I'll never work again. I hate that the most, but am now starting on a path to getting a home business up and running. It's a great challenge and one I'm looking forward to. It is and will keep me busy! I've heard stories from others who did or still are working and have stories similar to yours. Their bosses being either complete jerks, given ultimatums, etc. It really is sad. I feel that if what you do allows you to possibly work from home a couple days a week, then it shouldn't be a problem! Some people....
I wish you much luck in getting to do the at home thing a couple of days a week.
Hugs,
Karen
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Thanks so much for your reply and for your words of encouragement. You are so right! I have had to change my job role from a practicing Peds nurse to an onsite IT support specialist to now an IT AC which means that I am on the pc in my cube all day working on our EMR system. I am fighting to stay employed as long as I can. Why would an employer discourage this ?? Its beyond me as well. What can we do except continue to try our best ? I wish you the best of luck with your new business ! It helps to keep your mind focused off the pain of RSD..... Thank you again for your reply it meant so much to me to hear your voice in this !! Bless you my friend..
Kim