I know how you feel. It seems anything we do can cause it to spread. I have the scs and the battery in the butt. I'm going to have the battery moved July 15th. My dr doesn't think it is the battery causing all the pain, but rsd that has spread now to my butt. I have been trying to live my life normal. this includes taking care of my horses. about 2 wks ago, one of my boys went to rub his head against me and hit me with enough force to throw me into the stall door. Now there is a chance that the lead for my left leg has been moved. the one in my right leg is fine. I'm hoping that reprogramming the unit will fix the lead problem. If not, I know what is next. Do I regret going back to my horses, No. I believe in quality of life, not quanity. I love my boys, and if I can't be with them, then what is the reason to be here. My youngest daughter gets married this Sept, and it is time for her to start her own life. One that doesn't revolve around us. Of course, I've had this rsd for over 5 years, so I have come to terms with it. I will probably never ride my boys again, I'll not be going on roller coasters, (which I love), bumper cars, etc. but that is ok...they are dangerous for scs owners. but I can still do some things, and if anything happens, then there is nothing I can do about it. I hope that you will try and enjoy what you have and don't do anything that can cause it, but please don't put yourself in a bubble. You need to have some joy in life.

Hugs
Mary