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Elder
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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Elder
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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I will see a rhuemy soon, and he will completely rule it out. I DONT have dry mouth, but I do have very dry poop. I drink tons of water through the day. I have a humidifier running 24/7 and I feel like a dust ball. My skin is better with the humidifier, but it is still prone to dry ezema. I used to have severely dry mouth in the past, but learned some hygiene tips that really worked, and I dunno, it just all sorta turned around.
I ordered the EyeEco kit for severely dry eyes. Its a double eye cup style blind fold. it has soft pads in it that can be wet. There is a heating pad that can be placed behind the pads to make a spa bath for your eyes. I only got it yesterday, but it was quite wonderful to take a break. The eye cups block out ALL light, so its very dark, and forces your eye to rest. That will be a great tool for the MRI machine. I MUST cover my eyes in there.
I have not been given restasis, but I do take natural tear products. I only use the single serve stuff, to beat the preservatives. Systane is a product that lasts longer than normal natural tear products. My drainage ducts are wide open, so no matter what goes in, it slides right into my sinus. so, I will be happy to keep any moisture. July one is my day for plugs. I hear that you cant see/feel/or be bothered by them. I am looking forward to not waking up with my eyes so dry I almost have to peel my lids off um.
This has been quite the learning journey. My MD threw in all kinds of other tests like Lupus, and Sed rates, and Arthritis markers with SSA and SSB testings. All came back within normal limits. I hear many who have big sx and normal blood tests, get a positive lip biopsy. I am happy to not have any new diseases. I have my hands full with the old one.
I will let you know when I get the plugs. Did I feel um? did it hurt? do they help? and so on.
Thanks for the cheerleading. you guys are awesome.
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RRMS 3/26/07 .
Betaseron 5/18/07 .
Elevated LFTs Beta DC 7/07
Copaxone 8/7/07 .
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