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Old 06-27-2008, 12:20 PM
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suzyqz_2007 suzyqz_2007 is offline
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Join Date: Jan 2008
Location: Houston, Texas
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15 yr Member
suzyqz_2007 suzyqz_2007 is offline
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Join Date: Jan 2008
Location: Houston, Texas
Posts: 643
15 yr Member
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Quote:
Originally Posted by Dejibo View Post
I am frustrated!

I was told probable MS in 06 dx in o7 and started Beta. it was horrible for me. I had severely elevated liver enzymes. set clinic records. It was scary. I stopped and was placed on copaxone. I waited more than 2 weeks past the beta to give my whole body and liver a break. Started on Copaxone and had lots of issues from the start.

Lumps, bumps, itches, IPIR a few times. dull needles, plungers that wont push, sensitive skin. EXTREMELY dry eyes and skin since starting. I have the rare side effect of fatigue with it. I have just not been happy with it, BUT...I know that it is my only CRAB hope right now. I have been shooting everyday since 08/09/07.

My last MRI showed 2 new lesions and a glioma! I have had the glioma for about a year, but no one felt it worth mentioning since it was so small. Anyway, for the last few months, since my last flair, I have really had a motivational issue with taking my meds! I do take it everyday. its so rare that I skip. I did skip my burfday.

I need to get more motivated. Mental attitude is soooo important. I need to feel good about taking my meds! I am having an MRI on July 12, and that will determine if Copaxone is working for me. If I dont have any more lesions or probably if I do, we are going to try to rescue my copaxone relationship.

Can you help me find ways to get happier, more positive, and upbeat about taking this stuff? There are just too many days that I want to lay the needle down and go bared bottomed into the world of MS.

help me!
I'm sorry you're having such a difficult time...I wish I could offer some advice but I'm afraid that I am going through about the same thing. I stopped my copaxone shots about a month ago (neuro doesn't know) because I got so tired of the pain and muscle aches I got from them. I go back to the neuro on the 11th, he probably won't like that I stopped but oh well. It can be so disheartening having to take meds when they hurt or make you feel sick and all you have is faith that they're helping.

I'll say an extra prayer and send good vibes your way.....wish I could do more...just hang in there and know we're all here for you!

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Dx'd RRMS July 2007


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"Thanks for this!" says:
Dejibo (06-27-2008), Twinkletoes (07-01-2008)