Thanks to everyone again for your kind replies. I just have a couple of questions.
Liza Jane: you mentioned you think this is an inflammatory PN. What does that mean? How do I get tested for that -- is that part of the autonomic testing or is that bloodwork? My lupus score on my blood work was just above normal so I'm supposed to schedule with a rheumatologist too -- told that will take forever to get an appt.
Mrs. D: Are you a doctor or clinician of some kind? I'm asking purely out of curiosity.
to everyone: Do any of you have color changes to your skin? The top of one of my feet turns red and purply sometimes, and I have bright red patches on the palms of my hands (no pain or numbness there.)
I just bought some of the capcaisen (sp?) topical yesterday and will see how that goes. Autonomic testing is Thursday. PRAYING for a normal result on that. My stool has been lose for a few months (I know, TMI) so I'm praying that's not related.
Thanks again everyone,

Kris