Someone I used to talk to on a forum had this, and apparently there are "Chronic Pain Specialists" who can help. We have one or two "Chronic Pain Clinics" here in Vancouver, so I imagine you have them in the US too.
She used to always post the following website for getting information:
http://www.painonline.org/
I get this type of pain too, but so far have recovered from most of it after the attacks. I can't imagine trying to live with it.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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