So good to hear you have a doctor who listens to you and doesnt automatically think you are nuts. I was in an auto collision four years ago and shortly thereafter developed cervical dystonia for which I receive Botox injections with so-so relief (but better than nothing). A year ago I also developed "burning" in feet, legs, arms and hands. Saw a local neurologist (who is not my movement disorder specialist as he is 2 hours away) and he
suggested I was hyperventilating...very little assessment. Saw my movement disorder specialist and told him at times my arms are burning hot but feel icy cold to touch (this has been confirmed by my husband who i am sure thought I was nuts before he actually felt them...hands, lower arms and shoulders warm, upper arms icy. Same thing happens to areas of my legs.
Anyhow this MDS said "hormones"...didnt even feel my arms. Too busy acting like a god in front of medical students. I also have fairly constant headaches. NONE of these problems before accident. Have had brain MRI, (normal brain), cervical MRI shows bulging discs and spurs, EMG and NCV which showed nothing. So here I am absolutely miserable with doctors basically ignoring me. So basically I am doing nothing...maybe someday something on a test will show up. p.s. have had all labs and no diabetes, heavy metal intoxication, magnesium deficiency, etc. Sometimes I feel if it doesnt show up on an MRI or lab test then nothing is wrong with you. I am
very discouraged! Glad some doctor is listening to you and taking you so
seriously. Best of luck to all of us!