Hi Nancy and welcome to NeuroTalk! I'm sorry your husband is having such a difficult time being diagnosed. It's so hard to be in limboland and not know what's causing the problems. Keep looking - there is a doctor out there that will be able to help you.
In the meantime please take a look in our Epilepsy and Seizure Disorders Forum. There might possibly be someone there that can offer you some advice. Here's the link
http://neurotalk.psychcentral.com/forum11.html