Hi Shari,
The only thing that I would add is maybe try the Tensilon Test. It's how I was diagnosed. I've also read that the blood tests can be negative one time, and then positive another. There really isn't anything normal about testing for MG. Unfortunately, there are also many many other autoimmune/neuromuscular diseases that can cause these same symptoms. So for some, it can take a long time to find out what is going on. Limbo land is the worst!! Sorry, you have to be in it right now.
I would seek out a Neuromuscular specailist, or someone who had dealt with MG before. Read as much info as you can, and if you need to , write down questions to ask. Most doctors are willing to answer them. If he has a problem answering them, or gives you an attitude, go to someone else. You don't need that!
Best Wishes