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Old 07-01-2008, 03:37 PM
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Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
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Join Date: May 2007
Posts: 7,009
15 yr Member
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Hi Patch. I am glad they are finally treating you.

I've had about 30 IVSM 3-day infusions since I was dx'd in 2001. I am the opposite of Tracey...I sleep the whole time and I don't eat much. I do get the upset stomach so I keep lots of milk shakes (atkins type) on hand and drink lots and lots of fluids...water, iced tea, lemonade, cranberry juice. hot tea...whatever...especially during the infusion.

I've also learned that if they mix it with D5W instead of saline it 1) cuts down on that nasty taste and 2) decreases the fluid retention.

Also, I don't do the oral taper afterwards. It does nothing but wreak havoc on my stomach and I get no residual effect from it.

But as you will learn, everyone is different. If you get the high, then ask from something to help you sleep. You WILL need it. I don't.

Keep us posted on your progress. It may take a couple of weeks for all the symptoms to subside and remember to rest rest rest!!!!
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Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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