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FaithS · 07-01-2008, 04:43 PM

Re: Steroids

Hate 'em. But, for me, it's the only way to get me out of a flare.

I used to have 5-day IVSM (intravenus SoluMedrol)steroids; 1000 mg. Followed by long prednisone tapers.

The last several times, I have requested to take my steroids orally (1000 mg of prednisone, instead of IV's). My veins are difficult to find, so it is just my personal preference to avoid IV's. Once, it took 2 competent nurses 2 hours and 6 sticks to put my IV in.

Prednisone is also less expensive than IV's. That certainly is not the typical way to get a high dose of steroids, though. Pharmacists have usually not seen that type of Rx before, and call the doc to confirm that it is accurate.

The combination of steroids and flares (I'm not always sure what causes what) usually makes me tired and fatigued, but often unable to sleep, other than snatches. If sleeping is a problem, don't hesitate to ask for sleeping pills while you are on high doses of steroids. The sleep will help you to get well sooner.

As others have said, steroids often increase appetite and cause weight gain. Eat lots of fruits and veggies; drink lots of water. They can also cause "moon face".

Best wishes. I don't envy you. I am still tapering off of prednisone, following a flare that began the end of April.

~ Faith