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Old 07-02-2008, 11:57 AM
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Join Date: Aug 2006
Location: Vancouver, Canada
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lady_express_44 lady_express_44 is offline
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Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
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Quote:
Originally Posted by SallyC View Post
Cherie, is this the member of BT, who just died of Cirrosis of the Liver (thought to be caused by long term use of Beta)??

You made it sound as though she died because of cellcept.
I didn’t mean to imply that Sally . . . this thread about CellCept was posted on the day I found out about her death, so the topic reminded me of that announcement.

They have no idea of what cased the cirrohsis (hmmm... how would they categorize this death in that databank RW posted?), but what we do know is that she used a lot of aggressive MS treatments.

She was on Beta for 14 yrs, but it was while she was on Novantrone that they discovered a “damaged” liver. For that reason, they discontinued her last few potential dosages of Novantrone, but she continued on with Beta. Next they introduced CellCept into the cocktail, then when things got out of whack WORSE, they stopped just the Beta.

She was still RRMS, 54 yrs old, and only had MS since the early 90’s. She was not severely affected by her MS, still walked, drove, etc., so she may have had many more years ahead of her before the MS caused severe disability. However, she clearly had a very aggressive doctor . . . and personally I think she paid the price for his "experimentation". That’s what scares me about trusting doctors to make good decisions for us, and the reason I want people to be fully INFORMED of the risks they are taking.

We lost a good lady.

Cherie
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"Thanks for this!" says:
SallyC (07-02-2008)