Kathy,
I am not familiar with your affliction so I looked it up. I only briefly read this one article but it states that it is able to be cured with a liver transplant. Now, I know you might not want to or be able to consider something so invasive but I thought you might be interested just the same.
Maybe they have something that can help you that would be the step "right before" the transplant?
I understand your concern about living another 29 years. Honestly, I do. I think the same thing. It is not something I want to do. If I were to list all of my afflications, MS would be the one that would catch everyones' attention. But, MS is NOT my biggest problem. If MS was all that I had to worry about healthwise, I would consider myself lucky. So, I can emphasize with how you feel.
I shall keep you in my prayers.
http://www.medicinenet.com/amyloidosis/page2.htm