Carolina

Thank you, but I have a different strain. The type you refer to the amyloid is produced in the liver. That is why a liver transplant is recommended.

My type is systemic and produced in the bone marrow and infiltrates everything, roots and all, down to the cellular level. It's similar to the primary type of amyloidosis, only at a slower rate. I don't qualify for stem cell rescue because my type is genetic - the gene will continue to instruct my body to overproduce amyloid.

Whatever I've lost at this point, I'll never get back. The amyloid acts like cancer, but it's a "natural" substance - the body doesn't know to defend itself. The amyloid infiltrates, then slowly replaces itself with whatever it finds. That's why docs never saw anything on x-rays or blood tests and could not explain why my mother was falling apart. For years, her official diagnosis was "hypochondria"

I appreciate your concern.