It''s very hard to believe, it would have been nice to have permitted the doctors who we have trusted with more than our time to be given the chance to discuss this with their patients. I too will be making calls, not to scream but to hopefully be able to understand the results. Peg I know this is very disappointing for you. Hey at least you know what you have. Many of us I imagine will find out shortly. For me the discouraging part is There are 77 people now eliminated from future selection at clinical trials, regardless of sham or not.
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Originally Posted by jeanb
Spheramine DOES work.
This is why there should be patients in the process - what were the end points that they failed to meet?
We have pwp who are doing better - just not good enough to meet the end points? maybe researchers need to reevaluate what a SUCCESS is. I bet that success measured by a pwp is VERY different than success to measured by a researcher.
GDNF failed but it works
spheramine failed but it works
the system is broken
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