I haven't really updated to everyone on Jim's condition so here it is.

The new urologist is wonderful and he's on top of Jim's condition regarding his chronic UTI's. Although he is hard to get in touch with, he is talking with Infectious Disease to figure out a plan of attack on his various bacteria wreaking havoc on his bladder. One idea will be to flush his bladder with antibiotics. I currently flush his bladder now every other day with saline. The urologist is concerned with resistance and so flushing seems to be the route to take. I'll update further once he gets back to us.

Jim's new primary concurs with the urologist and is on the team as well. His FIL has ms and is resistant to all oral antibiotics due to his chronic UTI's as well and is interested in Jim's case not only for Jim but for his FIL. Jim, in the meantime is taking Azo cranberry and vitamin c as a preventative.

We also saw the neuro last month. Jim has NO active lesions!!!!! She recommended us to try cutting back on Jim's meds to see how he does. All of Jim's doctors, urologist, neuro, spinal cord and primary knows he smokes mj and approve. So far Jim has been able to cut back on his valium, gabapentin and tizanidine. Our goal is to completely come off the gaba and tizanidine. For some, mj works and not for others. We see a major impact in terms of cutting back on so many meds. We don't encourage anyone to do what Jim does, but for him, it works.

His pain level is the same and we don't think we'll be cutting back on his methadone or baclofen as these meds work on his daily ms symptoms. The gaba and tizanidine were specifically given for nerve pain so this is why we've been successful so far. The valium we are weening because Jim has taken that since 1988 at the same dosage. At this point we feel it may not even be working and the other meds are over riding it anyway.

Nothing is in stone, it's all a trial. So that's Jim's update and we are encouraged for his future. Once the UTI's are under control we are hopeful Jim will be able to finally live the rewards of having no active lesions, if only for a little while.