As discouraging as the recent news about Spheramine is, I remain dedicated to speaking about, promoting, an d participating in clinical trials. It is the only means we have to get better treatments. Thank you to the people who have participated in clinical trial(s). You are part of the solution. And yes there are flaws, and that is why I am on the working committee to write the Declaration... and why I work hard on grassroots efforts to spread awareness about the need for change.
To all the folks who have been trial participants, you can send me a photo and I"ll change it to a BW sketch & post it on
www.showusthecure.com/shared_stories.htm and if you want to post a sentence or two about yourself, even better!! Sketches and stories by some of who visit this board are posted there... )
To the 99% of PWP who choose not participate in clinical trials, I hope you will keep an open mind about it. Remember what we do today affects PWP in 5-10-15-20 years. The meds we take today ALL come to us thanks to the clinical trial participants of the past.
Jean B
www.showusthecure.com/shared_stories.htm