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Old 07-04-2008, 08:59 PM
chrishadms chrishadms is offline
Junior Member
 
Join Date: Jun 2008
Posts: 52
15 yr Member
chrishadms chrishadms is offline
Junior Member
 
Join Date: Jun 2008
Posts: 52
15 yr Member
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See and I had more lesions in my spine than in my brain for the first three years I had MS.

What does that say?

I agree they are not too sure about the inflammation and by default the earlier the disease is caught the better.

PPMS is a bad one and I agree this may not be for those folks. I just hate when people like me who had lesions all over their head are told they are PPMS by one neuro and another says it's RRMS.

What harm does it do to allow JH to decide what you are? SPMS doesn't necessarily show active inflammation either. In fact I know of someone with some big black holes who just had this done.

I guess I just don't trust what any neuro's say anymore because I have only met one staff pro actively trying to fix things.

I assure you all if you went to 10 neuro's 5 times you would be RRMS, 4 times SPMS, and one neuro will call it PPMS. ( OF course this doesn't apply to all)
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