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Originally Posted by GladysD
I'm just curious reading through this thread....Were you classified wrong?
Not trusting the neurology field because you've only met one staff-member proactively trying to change things??? I'm baffled!
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I agree we should go to Drs we trust, but to not trust because your dr's aren't out there 'fighting the MS fight' tooth and nail, well....seems a little silly to me, but that's just my humble opinion.
I'm sorry that you feel the dr's aren't proactive enough in the hunt for a MS cure. It's a frustrating disease! It's tiring to feel like we are going it alone, this I know!  |
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I understand wanting proactive - It's a mix of frustration and wishful thinking for me. IF I got the right, smart, proactive MSNeurologist, every thing would be different. After 4 neurologists and not much being done for me (two at JH, 1 at MS Center UMM, 1 general neurologist at beginning (didn't help past DX at all)) I think maybe it's not them, maybe me and my PPMS are stacking the odds against me. I will not stop being aware of new advances and theories in the MS field, but while always hopeful, I am wary.
I had a neurologist (who was not right for me in specialty, so saw briefly) say "I can't cure you, so I'll entertain you" and then did magic tricks. I liked him, for awhile I was entertained, liked it better than the neauros who can't do much but don't entertain. After Dr. Calabresi (JH Head of MS Center) pricked me with sharp thing which I felt every time, he offered to let me kick him in revenge. No wonder I liked him so much.(No, I didn't kick him) A neurologist willing to show a little of himself is hard to find.
I hope they figure out some of this puzzle before it's too late for me, but being realistic, know it may not play out like that.