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Old 07-05-2008, 08:50 AM
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Snoopy Snoopy is offline
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Snoopy Snoopy is offline
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Join Date: Sep 2006
Posts: 2,280
15 yr Member
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Quote:
Originally Posted by chrishadms View Post
No my spine showed all the damage at first. I had nothing in my brain.
Chris, just a FYI:

Many people with MS can have spinal lesions and not be PP, I am one of them. I am RR, have had the relapses (6) to prove it.

I have numerous cervical spine lesions, that's where my MS started. I was dx'd in 1986, as of late 2005 I have 2 brain lesions and a curved black line ( 2 or 3 lesions in a row where there is permanent axon damage).

I am still ambulatory, have helped raise our 2 children (16 & 18) who were born after my dx. I have a wonderful neuro, he is the same one who dx'd me years ago.

I am not a risk taker with this disease. In my case, I am concerned about using any treatment and it causing more problems than it would solve.

I will take my chances with this disease and the natural course.

Will HiCy be a cure for some? Maybe. Could HiCy be just like any of the DMDs - a temporary reprieve? A slowing down of disease progression? Possibly.

I will follow the stories of those who use HiCy and hold my opinion until more is known.
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