OK that is my point. Half the docs say the chart means nothing. Half the docs say the EDSS scale is worthless too.

I was PPMS according to the chart. That is the point of the disease according to 2 neuro's I have spoken with that shows no activity and steady decline. I had nothing but Spinal Lesions for the first three years of my diag. So I had Spinal lesions...aka, PPMS, no brain lesions and constant worsening of symptoms from onset also a sign of PPMS. I would have killed for one those little physical plateaus in those cute little charts. I didn't even get a squiggly line.

As a neuro explained to me the charts are great but what he needs to see is this: Do you have lesions that enhance and then at times do not? This means your MS is Relapsing when they enhance and it's Remitting when they stop. Relapsing Remitting is a clinical term used for the MRI but can be exchanged with physical symptom recovery as well. It's why the chart is developed to establish some kind of relationship between the two. Even though we know MRI does not correlate with disability.

The one neuro I met from BC at the end of May at the convention also referred to MS as "Showing MS" or "Not Showing MS" instead of RRMS or PPMS. He said SPMS was just bad RRMS that had moved past inflammation and was leaning towards PPMS or "Not Showing"

No, the chart has been there since the first week of my diag and the only one who made any sense of it to me was the nuero in May who told me that chart made no sense.