The
GREAT news about all of this is that even if you do have PPMS, which seems to be the case, this treatment is working for you, at least for the time being. It must be stopping whatever inflammation you have going on . . . chances are what’s causing you the most problem is spinal inflammation. Mine “flare” regularly too.
Quote:
Originally Posted by chrishadms
I can't understand why someone who has cancer would do chemo but someone with MS wouldn't....
No folks MS is a cancer it just doesn't have the crazy tumors to look at. It has lesions and if you get the disease in the beginning with chemo, just like cancer, you can get better and get on with life. This is what the HiCy seems to show....
I have been doing all I can to try to get folk to realize that if you have a MRI with a white spot in it you should be calling them. It is the only thing covered by insurance right now that is promising to stop it for sure and to also regain some lost mobility.
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As per my prior posting:
Quote:
Originally Posted by lady_express_44
Reporting in the June 9 Archives of Neurology, the Johns Hopkins team said the disease appeared to reverse course for seven of the nine patients over two years following treatments.
Kerr cautions that the "reboot" phenomenon didn't work in all the patients. Two years after treatment, MRI images showed that the disease had reactivated in about half the study participants, suggesting that their renewed ability may not be permanent."
http://www.medicalnewstoday.com/articles/110709.php |
There are no treatments out there yet that are “promising to stop it for sure”. If what they’ve found is that it doesn’t work for 2 out of 9 patients (23%), AND then 50% experienced a reactivation within two years . . . it is a long way from a cure.
However, for those who have run out of options, I personally think it might be worth a try. What are the major side-effects and risks (based on this very small patient study to date)?
Cherie
Ok, I'm done ;-)
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.