Quote:
Originally Posted by chrishadms
Well I know of of two people who quit the Tovaxin trial to do this and they were getting the real thing. It was the reason why I was wondering if anyone with Tovaxin had seen lesion or black hole healing like they are with Revimmune.
I am not saying you need to hop on any band wagon folks. I just find it sooo fascinating how some say they want to get better but get rather mad when others actually do.
Kick back and wait. If your MS will let you -do it!
I wonder how many have been defined by MS and now that the definition is changing so are these people. A lady told me, "I've been doing stuff concerning MS for so long I can't imagine what I would do if MS was gone!"
Exactly!! No one likes change.
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Chris....saying stuff like that
will make you unpopular. I like you and have followed you at thisisms and now here. Don't spoil it by making condescending remarks like that.
We are a smart bunch of people here and can read and take in the data and make decisions on how we treat our MS. You can't push it on us. You can put the data out there, inform us about this new treatment, and let it go at that. But when you start putting people down for not following your advice, that's just not a good idea.
And just b/c two people have quit Tovaxin doesn't make it a bad drug. It just didn't work for them.
How many people have quit Tysabri? Betaseron? Any other medications?
I quit Beta and I quit Copaxone. Does that make those drugs bad? No, they just didn't work for ME.
As I already stated, Chris, your enthusiasm is to be applauded. But don't ruin it by being pushy and putting down other people's choices. This is just too new to be accepted by everyone right now. And you also have to take into consideration that not everyone CAN get in for treatment, even if they wanted to!
Just tell us how you are doing and let those who are interested ask questions and don't be so negative to those who are skeptical. It's not productive.
