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Originally Posted by LizaJane
Okay, so, now there are loads and loads of folk looking at this thread and posting. I'd like to ask all of you---who has pn here? Does everyone? Please, folk, fill out a profile and put some basic information--it helps if you put your major diagnoses, approximate age, sex, and maybe a few other things there. I find when I am reading folks' posts who I don't remember, I look at their profile in the hopes of being reminded what they have and who they are, and rarely is the info there. So, please identify yourself---are you a pn-ner? Did you put something in your profile to summarize your basic medical issues?
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Okay, folk, if you don't have pn and have been posting here, I'm curious---what brought you to this thread? What's kept you here? Not that I am disinviting anyone AT ALL. I LOVE THIS THREAD. I love how many people are exploring and talking and joining the talk. It's fabulous. But I'm curious.
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Well, I made one post, does that count? lol
I've been reading in PN for years (on that errr "other board"), but I don't read all the messages. I read a lot of the forums because if I listed all the conditions and symptoms that myself and my children have, we'd cover a lot of them. I do not intend to list them in a profile. I wasn't aware that was needed. ???
I also didn't realize one needed to have a condition in order to post on particular forums. My former ex-father-in-law had Peripheral Neuropathy and I nursed him for years when he got to the stage he couldn't walk at all. I've been experiencing strange symptoms in the past 2 years since a fall. I saw a thread here where people were talking about lack of feeling in the feet and falls. I was very interested because of what's been going on with for me in recent years.
As for putting something in my profile listing conditions. I'm sorry, I have never done that anywhere on the internet and don't intend to start.
Edited to add: BTW, I understand that people are hurt. What I don't understand is that the thread started to sound a little like that game "chinese whispers"... where one person whispers something on to the next person and so forth... in the end the whole meaning and and reality of what happens is lost. e.g. forum users linked to JL purely because they use the other forum, linked to Brigadoon, linked to Second Life, suddenly linked to cybersex. Some of what was said on this thread was shockingly incorrect.