Sometimes my discs in my lumbar inflame so much that I also cannot sit down. In March 2005 when my PN came on, coincidentally I had the worst flare from my lumbar disc ever. I neither could sit or stand for 10 days. I was in agonising pain,and I had the initial onset of bodywide PN. Needless to say I was a wreck and very much in pain. I really hope you are on some sort of pain relief.

Also my pain levels were very close to 10 all the time, and now it's down to 4 or 5 on a daily basis. But the bodywide distribution of PN makes life very challenging to say the least. I am 33 years old, and I constantly wonder what's going to happen in 10 years or 15 or even 20. Scared to think about it sometimes.