There is a fact in the quantum world that you can never know reality directly because the act of looking at it changes it. I sometimes think PD is like that, at least to the extent that there is a disconnect between the lab and life. We know how individualized it is, yet research is looking for the common approach. The assumption is that if it cures me, then it will cure you. You have to keep a keen eye on your assumptions - they will ruin you faster than anything. If the cause is individualized and the manifestation as well, why do we assume the cure to be universal? It may be a way of keeping the problem manageable, but that carries no weight in the world.
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Originally Posted by aftermathman
apparently recent tests in the UK aimed at getting DBS moved from "under the counter funded "research"" to bona fide treatment, tests showed an improvement over medication for one year only.
General amazement all round, Neuro is as amazed as me, his comment, "we may have shot ourselves in the foot".
No more detail at present but yet another example of difficulty measuring PD progress ? I'm beginning to wonder if we can get anything through trials.
Neuro also told me of placebo / sham surgery in clinical trials affecting and improving PET scans, how on earth can that happen ?
Come on Neil, lie back, deep breaths ....
Neil.
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