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Old 07-08-2008, 02:15 PM
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SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
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Quote:
(RedPenguin) ..PVNS/Chris is staying in the apartment upstairs from me in Baltimore (we also shared a nurse over the weekend!) tee hee.
Quote:

As for Tovaxin, I didn't consider trying it as I couldn't handle the idea of receiving a placebo over real drug. I know that is the point of studies....but I just wasn't able to go there.

However, as I'm doing just "too" well from the chemo, I have joked with the nurses that maybe they gave me a saline solution instead of chemo! They assure me that is not the case....more likely it's just that I'm some weirdo freak of nature who didn't have any reaction to the chemo. Of course, I'm not out of the woods yet.

Also, just a note - the docs at JH *never* told me this was a cure for MS, nor did I expect to wake up the next day and not have MS. I personally think that is a load of bull - b/c even with cancer, a person doesn't undergo chemo and then the next day be in remission from the cancer. It just don't work that way! Wish it did....but I live in some sort of reality I guess.

BTW, everyone has said I looked better on days 3&4 of the tx than on days 1&2...and I think this is because they also gave me iron infusions. My docs have previously said that I was anemic, etc. - to take iron supplements - which I had - but it never made a dent. Well, I guess when JH kept seeing my blood tests show such low iron, they hooked me up. I sure wish they did that back at home months ago! I think it's made a huge difference.
~Keri


Hi Keri, i moved your quote over to your thread, because 1. It belongs here and 2. I'm sick of that other stupid thread..LOL.

I am so happy to hear how well things are going for you....woohoo!!

The Doc's own blurb, says that HiCy will not be a proven cure until patients are shown to be MS free for 10 years, so, I would say that anything stated to the contrary is just a hopeful dream, for now.

Thanks again for your updates and please keep them coming.
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