Hi and thanks for the replies

I've been dealing with it for over a year and half as well but I didn't know what was until my last doctor mentioned it.
Anytime the flare is acting up...even the touch of clothing or water on my skin makes me nuts.
Mine is from the hip down to my thigh. I had 3 main nerves damaged in that area.
The pain is there a lot but when the burning, stinging start up forget I want to scream.
I've put ice on it to help the burning sensation. I tried numbing patches, pain medication. I am allergic to many medication so it makes it difficult to treat me for anything not just this.

There's not a lot of information on this which is unfortunate for everyone who suffers from it.
I've been searching online for some time and today I came across this site.
It's good to be able to talk with others who are in this same situation, not that I wish anyone had to suffer like this.
Well take care and thanks again.