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Member
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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Member
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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oy vey, yet again
Computers are tricky and it's easy to offend or sound like you're saying something that's not quite the way it sounded in your head. Sometimes I feel people get indignant about something they're read, when the writer was clearly saying something else. SO....Lara, even though you copied what I wrote:
Okay, folk, if you don't have pn and have been posting here, I'm curious---what brought you to this thread? What's kept you here? Not that I am disinviting anyone AT ALL. I LOVE THIS THREAD. I love how many people are exploring and talking and joining the talk. It's fabulous. But I'm curious.
You answered:I also didn't realize one needed to have a condition in order to post on particular forums. It kind of implies that I was asking non-pners to go away, when I certainly was not.
Glenn--you know me, and I feel hurt that you'd imply I was asking people to leave: I was not aware anyone specifically NEEDS to have peripheral neuropathy to post on this board or in any particular thread in it you said.
I don't want to feel defensive that I'm a nice person, and I feel I have to here. So, everybody....I am a nice person.
Last, about profiles and such. I'm not demanding anybody do anything; I am suggesting that if your signature does not contain something which gives a clue about you, you could put something in your profile that does. I'ts NICE to be able to know a bit about who one is talking to, when one's memory is not all that fabulous.
Lara, you say: As for putting something in my profile listing conditions. I'm sorry, I have never done that anywhere on the internet and don't intend to start. and I feel like you're implying I was asking for you to post very personal info. I was not. Really. I am a nice person. Really.
I have a particular interest in PN; that's one of my conditions, and it's nice to know who else is here with PN. Or whose father or hubby or friend has it. Just to round out the picture. I put my major problems in my signature.
Anyway, I'm done defending myself. If my suggestion feels helpful to anyone else, great; if not, that's okay, too.
And yes, this thread got WAY off topic, but I found it became an item of amusement embedded in the pn community, and I have enjoyed reading about everyone's antics and perceptions of SL. Really, it feels rather like a travelogue, and it's got a lot of good humor to it. It's brought me lots of smiles and chuckles.
Okay, 'nuf on this. Again: not telling anybody to go away; not telling anybody they must give away precious personal info; not telling anybody anything. Just making suggestions and being curious. Wow.
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LizaJane
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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