Quote:
Originally Posted by Porkette
Hi CZ,
I'm no Dr. but from what I've learned over the yrs. A coma, MS, a bad scare, drug & alcohol abuse, genetics, a bad blow to the head and trauma are the main things that can cause sz.
I know everyones body chemistry is different but when I was taking topamax the drug increased my sz. to 23 sz. in a month just like the drug neurontin which I later found out the company making that drug had over $240 million in lawsuits against them for how it's messed up people really bad.
If I may ask when you have your sz. are you aware of everything that's happening at the time and have you noticed uncontrol of the arms and upper parts of your body jerking around. This is what happens to me when I have a myoclonic sz. and it always happens about 15-30 min. after I go to bed or when I get up in the morning. Your RSD may be bringing on the sz. but I can't tell you for sure. My best advice to you is to start taking vitamin B12 1000 mcg. a day cut back on the starch foods and carbs. and stay away from anything with nutra sweet in it like diet soda. It's been proven that nutra sweet causes more electrical activity in the brain which can lead to sz. Start eating foods high in fat or check out the ketogenic diet. This is a diet that builds up keytones in a person body and the keytones stop the sz. To get the best help I would advise you to go to an Epilepsy Center which are usually at university hospitals and see an Epileptologist (Dr. specializing in epilepsy). Also get a calendar and write down each time you have these possible sz. along with a discription. If you are sick make a note of that also because sometime when a person is sick with a cold or virus it can trigger sz. Also some people are affected by a low pressure in the weather triggering sz. Take note of all that and you may see a pattern as to what time of day/night you have any possible sz. and what days of the month you are more likely to have sz. Here's wishng you well and May God Bless You!
Sue
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Sue, wow, my coma, was very tramatic, there were complications and I almost passed away, I ended up intubated for 35 days instead of the 5 days as planned. So to say the least, I have had some lasting problems from the procedure.
The first seizure to answer your question was shortlly after i went in a deep sleep, I woke up with violent temors in the head and upper body , yes my arms were involved. My head felt like it was in a pressure device, I was rigid but shaking. And there was fear involved. I waited for it to pass-felt like a few minutes but could have only been 45 seconds, I really dont know. I think I was praying to survive it. My neck was very sore after. I was weak. If I were to say I have warning signs they would be what I call grippers, my ribs and abdomen start sucking in-like something is pulling them from the inside.
the next one was even worse and more diffucult to come out of - I do know it lasted longer and was more severe, this one was in the morning.Again, alot of fear, nightmares but terrifing ones were going on during it but I was shaking violently, I felt as though I was fighting to bring myself out of it, but I think I was waitng for it to pass.Again it was in my head, upper body.
I think I may have been having them for a while and not know what they are. Is it possible to scream out at any part of them? I have done that before. Also I have woken up with the bed in total disarray with the sheets knotted around me. My husband said it looked like I had fought off something.
I have body tics and temors escalating, that could be from the rsd. I dont know. Alot of us with rsd have the spasms. But I know this is different and new.Its strange to say , having never had seizures, but i knew immediately that was what it was. does that make sense? I do use alot of splenda- is that the same as nutra sweet/ and I will cut the carbs. I dont drive due to pain meds, but fortunatly my sister is coming tomorrow and I can get the B12. the diet your recommedding sounds alot like atkins which I am familar with -so thats not a problem- I dont want to have anymore of these so Im going to get moving on this. I am going to start looking for a doctor.Ill pm you if that is ok. on locations. I cant thank you enough for you time and help. I really appreicate your help Sue. Sincerely, cZ
I forgot to mention I have alot of headaches- I am concerned about the topamax, I am trying to remember if I took an extra topamax because I had a migrane coming on- its possible. I will start the diary.