How very sad this is, my heart goes out to the kid. What can we possible do to get awareness, i have tryed everything my body can take. You real know what makes me mad, Stars like Paula whats her problem cant she speak for all of us. Know instend she thinking about being on the show dancing with the stars. Now i try not to judge but give me a break. I can only wash my hair twice a week, but she can dance. She makes Rsd suffers look like fools look at me i have rsd and i can still do everthing. Great thats going to help us.