Sorry to hear about this. It sounds like a hard way to live. Words escape me as this condition is new to me.
My clock is ticking and work beckons me to appear, so I must sign off. I'll be back to chat more with you at a later time. Until then, prayers sent out for you that you are comforted and that you can achieve some kind of resolution to getting the help you need to live a functional life sooner than later.
Good to meet you Junie
J