I haven’t been on the forum since I have been suffering from the sacro pain. (It hurts to sit much so I haven’t been on the computer much.) It has been 2 ½ months and I finally went to see an orthpaedic doctor. He was absolutely the worst doctor I have seen in the 5 years that I have had RSD. When he pulled the little triangle hammer out, I told him he couldn’t use that on my knees because I have RSD. Well, he went on about how I couldn’t possibly have it for 5 years because it goes away on its own in 2 years at the most. He then asked who said I had it and what tests were performed. He said there was only one test that determined RSD and asked what tests I had done. I proceeded to tell him and he kept saying no that’s not the one. I asked him which test he was referring to and he said I had to tell him. I figured out he was looking for thermomagry (sp?) as the answer and said that one also. He felt my hands and knees and said I didn’t feel like I had RSD. He asked what the pain felt like as there was only one type of pain in RSD. I told him I wasn’t there for him to treat the RSD, I just wanted him to treat my sacro. He said I would need to have an MRI and bone scan (convenient that he has those in his office). Then he wanted to know how many doctors told me I had RSD. I told him dozens. He said they were wrong. I asked him what I had then and he said he didn’t know but it wasn’t RSD. At this point I knew I had wasted my time and tears started spilling from my eyes. I went to leave the little inner office and he said “so you don’t want to have the tests done?” I told him he was entitled to have his own opinion on RSD. He followed me out into the hall and chuckled (in front of his staff) “I’m glad you said I can have my own opinion.” I said, “well, it doesn’t agree with 99% of the other doctors that I have seen.”

I got outside and realized I left my xrays. I went back and while I was waiting for the nurse to retrieve them, I went over and picked up one of his business cards and wrote the letters RSD on the back of it. I gave it to the nurse and told her to tell him to google it.

This guy looked like he hadn’t been in medical school in over 50 years. I don’t know if I can post names on this forum or not. Just wanted to let you newbies know that some of these older docs are not up on RSD.

Also, want to thank those of you that have spoken back to docs. That gave me the courage.


Thanks for letting me vent,
Linmarie