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Old 07-11-2008, 09:44 AM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Default How did your IV IG treatment go?

Did you receive your IV IG treatments? For me they were a life saver. I had a "crisis" and was admitted to the ICU for 9 days, during which I had the IV IG, blood and steroids and it made me feel GREAT! I've heard of others who had side effects, but I didn't have ANY - the whole experience (other than being scared out of my mind) was great and truly saved my life. I'm new to this site and to MG, so when I came across this site it was wonderful - FINALLY someone who is experiencing the same things - someone who can relate . After reading some of these posts, it makes me realize just how important it is to actually have a doctor who cares, and it sounds like yours actually does.......How are you feeling now? Your kids? Hubby? I hope all is well........Let me know if you need anything or would just like to talk. I also recently had a thymectomy and hope to be in remission soon. I was diagnosed March 6th and went under the knife April 22nd - so fast it made my head spin! Take care! Erin





Quote:
Originally Posted by nancylee View Post
Hi All,
I went back to see my neurologist today. He is concerned about my continued symptoms and feels that it is time to be more aggressive w/ my treatment. He believes that mestinon alone is not effective. I went for blood tests, & if it all comes back ok, he will schedule me for IVIG treatments. Has anyone experienced this? Did it help? Side effects? I am very down tonight. I will be ok, & I will face this with courage and determination, but right now I am not there. I am scared, upset, and frustrated. I just don't want to put my husband, or my 2 young boys through anymore! Any insight would be welcomed and appreciated!!!
Thanks,
Nancy Lee
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