Quote:
Originally Posted by lady_express_44
Failure to develop multiple sclerosis in patients with neurologic symptoms without objective evidence
No patients at initial presentation or at follow-up fulfilled diagnostic criteria for MS.
Conclusions
Patients and clinicians may be reassured that persistent neurologic symptoms in the absence of objective clinical evidence do not lead to the development of MS. Costly serial investigations should be carefully considered, particularly in the presence of normal neurologic examination at follow-up.
http://msj.sagepub.com/cgi/content/a...458507088156v1
Cherie |
Well - that should cover more than a few of us in limbo. All the physicians involved in that study and no hint at what could be causing the problems that mimic MS?
I think what has kept me going is the reassurance from the staff at the MS clinic that they believe me. Yes my MRI is free of lesions, evoked potentials are normal. My neuro exam is clearly screwy.
Is there a subclinical form of neurological illness that hasn't been identified yet? Something that might be environmental (post WWII)? There are times when the RRMS patients on the forum have less symptoms and disability than some limbolanders. That's great for the RRMS patients, certainly we can be happy for them. (If we were not, then we shouldn't be here).
I guess what it boils down to is quality of life. For me that means symptomatic treatment and the once a year reassurance from the MS clinic that I am not crazy even though I do not meet the diagnostic requirements for MS. After 10 years I seriously doubt I ever will.
The NIH will be flooded with mystery patients. Maybe something good will come of it.
Great info Cheri - thanks.