Hello Steve, and welcome to NeuroTalk.

I'm sorry to hear about the MSA. Is that your guess or has your doctor said that in a round-a-bout way? I also wonder if you've seen a Neurologist yet, or whether your local GP has been ordering all your tests so far. Maybe if you haven't, then the next step could be to ask for a referral to one.

I'll give you the link to our Parkinson's Disease Forum, and maybe some-one over there can give you the information that I can't.

Here it is : http://neurotalk.psychcentral.com/forum34.html

If that doesn't help, please feel free to look around the board and maybe you could post in the Rare Disease's Forum instead.