HI Pono,

I am so sorry to hear about all your pain I have never tried botox so I can't help you with that, sorry. I too and bilateral TN ON and anesthesia dolorosa from the surgeries. Have you been to a pain clinic?
There sole purpose is to try to help you relieve, and deal with the pain.
Nothing takes away my pain, but I have learned to cope.

For me, it has been a long journey.. but the most important thing I have done for myself is to accept my pain, and focus on quality of life. Now, that doesn't mean I am not always looking for that miracle

I hope you find the right drug cocktail that helps releive some of your pain.
Nikki