Nikki....
thanks so much for reply
I'm sorry to hear of your conditions and that nothing takes away the pain.

it's been long journey for me too.

Quality of Life is focus--but for me often needs "tweeking" -revision as to what that means, or 'is'
at times I have been able to accept & cope [better] but recently so many things- pains, problems -hitting hard.
these head/face pains another complication, challenge

i've been to many DRs, pain clinics but have not found any who "understand" , know how or willing to treat my 'complex' conditions or offered options my neuro has, like Botox.
but I'm still looking.

and also praying for that "miracle"....

wish ALL the Best