I'm sorry you went all that way just to be told sorry... come back in X years. I'm sure that was very frustrating.

I too am running into these kind of walls. My docs are researching several things they believe might fight this monster but they can't get any help from the doctors that actually do what they are looking at. I hope that makes sense. Basically they are being told that the medicine or procedure isn't really for RSD so they won't help or they are telling my docs to check back later. But my doctors want to see if it would work as many indicators are there that it will.

Now I don't know exactly what they are looking at as my docs don't want me to get my hopes up only to have them shattered. My docs just give me the basics of what they are looking at... I think they do this because they know I will go and look up all I can on whatever and get my hopes up.