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Oh Gabe,
You are so blessed that tapering that Prednisone that fast didn't cause you any kind of serious ICU type medicaol emergency. Wow.. You sure have gone through the mill.
Do you feel any difference since having your thymus removed? I read it can take years, and still have to be on some type of medication, and then I've heard of others who after a couple years noticed that they had been improving very subtle and then it hit them just how much they had improved.
I see the neuro muscular specialist in a couple of weeks, and I was hoping to be started on Cellcept, but now, I'm not so sure they will because of the latest study. My body can't go through an operation right now, so they won't do a thyectomy on me.
When I took the imuran, it made me sicker than sick. I truly thought I was going to die. So now, I'm a little afraid to try too many new drugs.
Love lizzie