Unfortunately, things have gotten worse. We are heading back to children's hospital this eve to begin plasmaphoresis. We have decided probably wasn't a good idea to start weaning steroids, so we are going back up on them just long enough to start azithioprine. Hope this works for him. He is so tired of feeling just plain crappy!! Will let you know what happens when we get back in a week or two! Any info on this new drug? Appreciate all the help again!
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Originally Posted by rumpled
No, I am thinking that he has several auto-immune diseases and the rheumatlogist may be able to help find if there is anything else that can be done. And they run in families as you can see. I was not thinking any particular disease.
Yikes on the steroids - the side effects especially on a growing boy can be horrid. That can give him Cushing's syndrome on top of everything else. The pred would be the diabetes cause BTW. When he gets off the pred, the diabetes should go away (I had cushing's from a pituitary tumor... I hate steroids).
Hope he can get controlled on the MG. It is no fun.
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