I forgot to tell you to ask about IV IG too! I don't know much about plasmaphoresis, but I DO KNOW THAT I RESPONDED GREAT TO IV IG. In fact, the hospital where I was admitted has several people that come in monthly for it for autoimmune problems. I don't think it's as invasive as the plasmaphoresis procedure.........
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Originally Posted by HiHo
Unfortunately, things have gotten worse. We are heading back to children's hospital this eve to begin plasmaphoresis. We have decided probably wasn't a good idea to start weaning steroids, so we are going back up on them just long enough to start azithioprine. Hope this works for him. He is so tired of feeling just plain crappy!! Will let you know what happens when we get back in a week or two! Any info on this new drug? Appreciate all the help again!
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