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Old 07-14-2008, 04:16 PM
eeyore2's Avatar
eeyore2 eeyore2 is offline
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Join Date: Jun 2008
Location: Midlothian, VA
Posts: 69
15 yr Member
eeyore2 eeyore2 is offline
Junior Member
eeyore2's Avatar
 
Join Date: Jun 2008
Location: Midlothian, VA
Posts: 69
15 yr Member
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Sorry about the abbreviation Abs---I did mean antibodies, but as my spelling sucks, I like to shorten things up

I can't believe that you had to get that bad before anyone figured out anything...I guess it is becoming a common occurance.

Last nite an today I'm not doing so good--I have another bout of asthmatic bronchitis (b/c I'm refluxing from my g-tube and aspirating the mushy stuff I'm trying to eat. I'm making arrangements to get the J-tube replaced which should eliminate the reflux. I also got prednisone for the asthma and leviquin for the infection (which of course I don't have the muscle strength to cough up)

Hopefully I'm preventing a trip to the ED.

This all sucks, but at least things should get better and my Hopkins appoint is only 8 days away.


Quote:
Originally Posted by erinhermes View Post
Hey there! How are you today? Yesterday was a tough day for me - barely made it off the sofa - but today is much better! Now about the TMJ.......I was having problems chewing and swallowing (plus I really do have it) but my "so called specialists" thought that all of my problems stemmed from it - I kept asking them why I sounded drunk (and that they couldn't account for), so I put my list of symptoms together for my regular GP and took it in to her. She knew what I had IMMEDIATELY and told me to see Dr. Ibrahim ASAP (in fact, she called for me and scheduled the appt. - she is the BEST) as well as scheduled a CAT scan and MRI. I had to have the invasive sternum splitting thymectomy b/c the cat scan revealed hundreds of "spots" on my lungs - something that my doctors were quite concerned about, but have since gone away .I met with my pulmonologist, who gave me a clean bill of health, so now all I have to contend with are the side effects of Prednisone and some weird blood issues that no one can figure out - hence the monthly blood tests I HATE THEM, but at the same time know I need them in order to stay healthy. What meds are you on? I can completely relate to your inability to keep your mouth shut ; my face was basically "frozen" when I saw my neuro - I couldn't pucker to kiss my husband or son or even drink - it was so frustrating! That, and people would always tell me how tired I looked - well no crap (!) I couldn't keep my eyes open, plus my eyes were twirling around like mad and hurt all the time......Enough about me......when you get a chance, let me know how YOU are today. OK, one last quick question: what are ABS? Erin
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