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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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Natalie -
After each of the 2 Ty infusions I had, I was "down" for about a week with exhaustion and feeling blah. I have to say - I felt worse after each Ty than I did after 4 days of high dose chemotherapy that I just underwent. The neuros at Johns Hopkins told me that my experience with Ty seemed to indicate that it was some sort of allergic reaction to it in some ways - not in the usual ways that have caused people to stop treatment with it....as long as it didn't cause a tremendous problem. I've been told that it might have gotten better with each treatment.
Good luck - and I hope Ty works for you and that your future infusions don't leave you so drained!!
~Keri
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