Quote:
Originally Posted by iogdngjdslf
im 17 ive done the pt type things nothing has helped now its 4.30 im the morning and i cant sleep again i went to the er again last night casue it was soo bad they told me one of the specialist docters would call me today they never did i cant do this anymore its too much i dont no how anyone is supost to live like this it hurts to much and im not even allowed to take any pain meds none of the docters will give me any so whats the point of having pain medication if you dont give them to pacients in PAIN this is nutttttsss
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I want to let you know that you are not alone! I got RSD when I was 15, I am now 23. I was WAY to young, as you are, to loose so much. I have an allergy to pain meds, so I can't take them. I also have RSD all over my body now.
What has helped me so much is to try to find what I could learn from having RSD. It is so hard, but I have found a strength in myself that I never thought I had. The same strength that you have in you. If you give up the RSD wins. You have to keep fighting it. If nothing else you have to fight it because not fighting it will make it so much worse.
I'm not sure what will work for you, but I found that if I can bring my body up to room temp I feel better at least for a little bit. I normally do this with a bath that is just a little higher then room temp. I know that wont work for everyone, but it does wonders for me. It hurts a little bit more at first, but if I give it a few minutes it gets so much better. IT almost feels like when you are outside in the cold and you put your hands under warm water.
The other thing that helps me is to have other signals going to my brain, i.e. if my husband tickles my back, stomach, or even my face.
I also put many many pairs of socks on (4-5) its not the heat since my socks will end up being colder then the air, but the pressure of the socks.
If I think of anything else I will let you know.
