Thread: Sjorgren's??
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Old 07-16-2008, 04:05 PM
Dejibo's Avatar
Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
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15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default Crap! Crap Crap!

ok, after an extended visit with the new rhemy, SHE, not he said..."yep! you have sjogrens." I said um, excuse me but my blood tests were ALL negative. how can that be? She told me all about the sjogrens markers. I have 3 out of 6 without blood tests. She is now calling my MS center to discuss a lip biopsy for me to figure out if the sjogrens is primary or secondary. (that would make 4 out of 6)

IF its primary, that means my MS dx comes into question. IF its secondary, that means I have it ontop of MS. She told me that its rare that she gets someone that walks through the door that she she says WOW, now that girl has sjogrens. drat drat drat and double drat!

Still no word on my MRI. I was given a prelim preview. I had 2 new enhanced lesions at least, and 2 non enhanced lesions. That would possibly mean the copaxone isnt working. if that is the case the solution is METHOTRAXATE! I dont want that! She told me I would have to go inhouse for a monitored course, and she would release me on pills after 3 to 5 days depending on my reaction. She said IF its sjogrens and not MS the copaxone/betaseron wont help me and the IVSM is the wrong steroid to treat it.

Has anyone else had the methotrexate? please tell me YOUR experience with it.

Drat drat drat drat drat drat drat drat. I am in another holding pattern while the MDs battle it out.
__________________
RRMS 3/26/07
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Betaseron 5/18/07
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Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
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Last edited by Dejibo; 07-16-2008 at 05:30 PM.
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