I'm sorry to hear that you aren't doing welll--you are still in my prayers. Sometimes if you tell them you are a hard stick and had problems last time they get you the most experienced nurse to do it...will you get a PICC line again...I've only had one once and it stayed sore the whole time it was in, but otherwise they like to change the IV site every 3 days (if it doesn't infiltrate sooner.)

You should ask your doctor to prescribe you so topical lidocaine...you can put that on 10 minutes before the stick and it doesn't hurt as much...although it is the threading part I can't stand.

IVIG is much better than the ICU...you certainly don't want to have breathing problems back again

Take care