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Old 07-18-2008, 02:42 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default The PD motto...

...should be, "If you want something done right, do it yourself." That applies to this type of research as much as anything. They are NOT going to save us! They are going to ensure their bottom line, dream of tenure, and generally look after their own self-interest. A few exceptions, yes, but we are all time-limited in this forum. But we are not helpless. With the Net and its resources plus the communication capabilities it gives us, we have a chance.


Quote:
Originally Posted by Fiona View Post
Anne, thank you so much for the excellent info and advice. It's clear that we desperately need knowledgeable people to help us figure this all out....

Is there no one out there who is willing to come to our assistance?????????????

lots of people read this site - does anyone know a doctor, a pharmacologist, a real savvy herbalist or even a good chemistry person willing to try and help a bunch of people who are fighting for their lives every day, some of whom are open to experimentation outside of the system at least try to have a life some way or other?
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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