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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Find Another Neuro!!!!!!!!!!
If I were you, I'd find another neuro - MG comes in waves.........Even I peak/ebb during the day and I'm on 60 mg. a day of Prednisone and 420 mg. of Mestinon. I was the same way before I suffered my crisis -granted it took a while to get there, but you don't want your mom to get really sick before she gets the medical attention she needs. If she's really tired, then she may need Mestinon - I know for me it worked for a while. Now, my neuro is very AGGRESSIVE, but in my case it was needed, cuz' this disease almost took my life, so when I hear of a doctor being laid back with someone's health it really angers me. If her blood work and doctor both confirmed MG, then she needs to be treated for MG - if she had diabetes or MS, then she would be getting the treatment she needs, but for some reason the medical community doesn't really seem to know much about this disease or how to treat it. Hang in there!!!!!!!
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Originally Posted by SandyC
My mom was told by her neuro that she does have mg. She isn't showing symptoms right now compared to her previous appointment. The blood work did confirm the diagnosis.
Her neuro has decided that if she isn't showing symptoms he's not going to treat her with the meds for mg. Her only possible symptoms right now are extreme tiredness after being out for a little while and eye twitching/blurriness. However, the blurriness seems to have lessoned since her last appointment.
It's hard to know what is what because in February she had brain surgery to remove a tumor that was benign. It was a calcium tumor and they got it out. The hard part is figuring out what symptom is from the surgery and what is from the mg.
For now, it's a wait and see game. Does anyone else have mg but not being treated?
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